Children’s Long-Term Support (CLTS) Community and Provider Forums – Please Share

The Wisconsin Department of Health Services is scheduling forums across the state to provide updates on the Children’s Long-Term Support Medicaid Waiver program – see below for details. The Children’s Long Term Support Waiver (CLTS) is a Medicaid program that provides supports to children with intellectual, developmental, physical or emotional disabilities. The program is designed to provide services and supports at home and in the community to children with disabilities or special needs. It is administered by counties.

  • The forums are being held because the Wisconsin DHS / CLTS Waiver is going to set statewide provider rates for most CLTS services. Right now each county waiver agency decides how much their local providers are paid. The federal government is requiring Wisconsin do this. The statewide rates are scheduled to start on January 1, 2019. The forums will also provide information about the Children’s Wait List initiative.

  • Registration is requested – see the notice below from DHS for more information and a link to register. We encourage you to register and attend so that DHS know that there is strong interest from the disability community. Here is a link to the schedule of the forums.

  • The Milwaukee session will be held August 9th from 10 AM – 12:30 PM at the Best Western Plus Milwaukee Airport Hotel 5105 S. Howell Ave. Please help spread the word to Milwaukee area providers, advocates, and families who may want to attend.

  • Note that the forums are being held in 8 locations around the state, including in Pewaukee on August 14 – there are two forums in southeastern Wisconsin.

Additional Background Regarding CLTS Forums
The forums are being held because the CLTS Waiver is going to set statewide provider rates for most CLTS services. These rates will have a big impact on whether a child has access to a service. In some cases the rates may increase access because the new rates are higher than what counties are paying. In other cases the rates may be lower than what a county is paying, which then may make it harder to hire or retain workers. DHS will distribute a list of the proposed rates at the forums. If you go, you should try to find out what the rates are for the services your child is receiving now. That way you can tell DHS if you think the new rates will help or hurt your child.

Two issues have not yet been addressed by the information DHS has provided. First, there are several rates for two services, supportive home care and respite. The rate is higher if the child has greater care needs. DHS has not explained exactly how it will decide which rate a child can use. You should ask DHS about that issue at the forum. Second, there needs to be a process that families can use to get a higher rate if the proposed rate isn’t high enough to secure qualified providers. You should ask DHS what that process will look like and how people will be able to use it.

If you can’t attend any of the forums, but still want to submit written comments you can do that by email at the following email address:

Questions People Can Ask at Community Forums on Rate-Setting for the CLTS Waiver

Here is a list of questions that you might consider asking if you go to one of the forums.

Questions related to the “tiers” for Supportive Home Care and Respite

What information from the long-term care functional screen will be used to decide which “tier” a child may be placed in?

What kind of needs would a child have if be placed in the middle tier? In the highest tier?

Will a family be able to appeal if they do not agree with the tier the child has been placed in?

Will DHS provide more information on how the tiers are determined before it starts using this new rate structure?

When will more information be available?

Questions related to an “Exceptions” process

Will DHS introduce an “exceptions” process by which providers or parents can ask for a rate that is higher than the rate generally available for a particular service?

When will we get more information about that process?

How will people or providers know about that system?

If a request for a higher rate is denied, will the parents or provider be able to appeal?

What types of situations does DHS think will be likely to be covered by this “exceptions” process?

Provider shortage is a real problem throughout the state. Low wages are a big reason for that. Will the inability to find a provider be a reason to exceed the normal rate for a service?

What will families have to show in order to qualify for an exception based on inability to find a provider?

Will DHS provide more information on the exceptions process before it starts using this new rate structure?

When will more information be available?

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Last edited by Tyler Schuster.   Page last modified on August 06, 2018

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